Thursday, August 27, 2009

Adi's Big Day- the First of Many

So today my little girl had her evaluation for therapy. She was seen by an occupational therapist, physical therapist, speech therapist and special education teacher. She qualified for everything. I don't know whether to say Baruch Hashem for that or not... It's unfortunate that she needs it, but B"H it's available and she qualified! Within five minutes of each evaluation it was clear that she would qualify, although they did finish the session to see what else they can observe.

With every next question they asked, I became more and more aware of how much behind Adel really is. Questions about what she does when she wakes up (she stays in the crib happily for too long), questions about how she reacts to tone of voice (she almost doesn't), questions about how she reacts to a dropped toy (she almost doesn't.)

The occupational therapist gave Adi a peg and board with holes. She put in a peg herself and tried to get Adi to do it, too. Adi ignored her and played with the peg. The therapist put a red button inside a hole in the board and tried to see what Adel would do with it. She ignored it.
The therapist tried to get Adel to shake a rattle by demonstrating on another rattle. Adel just stared. Once I took Adel's hand and shook it, she understood.

Then the therapist took a little wind-up monkey with cymbals and let it walk in front of Adi. Adi just stared with mild interest.

Physical therapy went something like this: Adel did nothing. LOL.
They determined that her muscle tone is very weak (upper body) specifically and that she uses her left side quite dominantly and tries to avoid her right. Right leg looks shorter because she doesn't extend it. When on belly, she pushes her left side up higher. When held upright, she puts more weight on her left leg and stands on tiptoe with her right.
I never noticed any of this!

I did notice, though, that she doesn't make a fuss when I dress her until it comes to the sleeves. And the therapist noticed that as well. Adel doesn't lift her arms high up. They are usually close to her body, or extended partially forward. She winces and whimpers when someone tries to lift her arms high. Also, when she shakes a rattle, she kinda flips her wrists and doesn't shake it from the elbow or shoulder.
The therapist undressed her and checked out her shoulder blades, but couldn't find anything wrong. She said that I should address it with the pediatrician. *sigh*

The special education teacher didn't do anything- she just observed and took notes.

The speech therapist gave me problems, though. She went on and on about starting solids and how I should have started at four months and that babies in their fourth month are more advanced than her. *eye roll* She said that she has to practice with foods and all in order to progress with speech. She kept asking me if I'd give Adel a bottle, would she know what to do with it? I said no, because she never had one. Why not? I am putting her at a developmental disadvantage by not giving bottles. Nice. The fact that nursing develops the mouth much better than any bottle or food can went ignored.
Then she tried another tactic. She said that once Adel is crawling or walking or whatever, she won't have the time to slow down to nurse. *?!?!?* Oookay... so why would she slow down to eat puree, then?
I told her that I know plenty of people who exclusively nurse their crawling babies and that crawling isn't incompatible with exclusive nursing.

I wasn't too annoyed, though, because my service coordinator warned me that the speech therapist is very opinionated on solids. Whatever. I will just have to request another speech therapist.

So our next step is to go for a hearing test. I don't think Adel had one at birth. That will be within the next week. And some time around Rosh Hashana there will be a meeting between all kinds of government people (I didn't care to remember their titles) to decide how often she gets each therapy, what time of day and all that.

12 comments:

  1. B"h you won't have to fight for the service buy YOY.
    side point-why didn't she ever have a hearing test?
    also, Genie Rogers is supposed to be the best speech therapist, specializes in feeding.

    I wonder if Ruchel would know what to do with a peg, I have to go try it.

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  2. poor kid, they all ganged up on her at one time.

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  3. sounds like your speech therapist would just love me. glad you don't have to fight for services though.

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  4. Genie's the one I had. She shoved a paper in my face to show me what she should be eating and basically blaming me for Adel's speech issues. (This paper says a 4 month old should be eating scrambled eggs. Aha.) I don't think Adel has feeding issues, though.

    Adel was born at home and I had to have a test done after birth, but I never did it. (blush)

    She actually quite enjoyed the attention/ganging up :) She even eked out a smile, and she NEVER smiles at strangers.

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  5. my dr specifically said no eggs till a year.

    you have to be firm with her-tell her what was done is done, she was nursed, now help me further, no looking back. she isn't the nicest personality but with actual therapy she knows what she is talking about.

    about the hearing test-bad you! (maybe because my mother is a speech therapist and I heard enough stories about how if its cought at infancy and the kid gets an implant you cant differentiate from a regular kid)

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  6. Does Hency Eisner work for your agency, she is also very good.

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  7. The thing is, I don't want to stay with her. I'm sure she's GREAT, but she's not the only great one. I want a great one that also has a good personality. ;)

    She said that I HAVE to start her on solids NOW. Three meals a day. I'm not even concerned about her feeding, but she focused on that and not on the lack of babbling.
    I called my friend who just got her speech degree and she said she specifically learned that exclusive nursing or eating solids has no effect on speech.

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  8. Ruchel dosn't know what to do with a bottle when its handed to her either, she plays with it, sticks it in her mouth and pulls it out. she thinks its a toy or pacifier. she will only drink from it if we hold her in the same position she nurses in and we hold the bottle for her. however at this point I think she is eating 2-3 meals a day plus snacks and nursing sessions... she might have dropped 1 nursing session during the day but she is making it up at night...

    and where did Genie get the eating scrambled eggs at 4 months from? my dr specifically said no PURE eggs, in kugel and cake its ok but no cooked pure eggs.

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  9. She gave me a paper. I think I'll photograph it and post it soon.

    It's so obviously outdated. Fist of all, it says that at 6 weeks-3 months a baby should be eating purees. Then at 4-6 months they should move on to textures, like scrambled eggs.
    I pointed out to her that the current recommendation is to nurse exclusively for at least 6 MONTHS, not 6 weeks. She just replied, "Well, you didn't start her on solids at 6 months, either." (said in a tone as if 6 months is a last resort, if I wasn't smart enough to start at 6 weeks.)

    I guess the no eggs recommendation was made after this paper was printed. It's so ancient, it's printed on a TYPEWRITER!
    I was more than a little disgruntled.

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  10. Also- about the hearing test- I had no reason to suspect hearing problems. Otherwise I'd take her in a heartbeat. They want a test just because they need to have a result on file. I'm confident there are no issues there.

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  11. Um, even I know (from my peds nursing) that that is beyond out of date. Egg yolks can be started at 9 months if you wish, but egg whites are a huge allergen and should be avoided until a year (Hellooooo?) Beyond that, no baby should be fed solids until 4-6 months, ever. And most doctors are fine with the 6 months. Even then, from 6-12 months nursing is supposed to be the main source of nutrition. 2-3 meals are fine, but they shouldn't interfere with nursing. And it is never required for a child to take a bottle. GAMZu, I don't care how good people SAY she is. Her information is so faulty that someone should be doing an inquiry into her education. This stuff is beyond ancient. PLEASE, don't use her. No matter what anyone else says. You cannot be a good speech therapist & not know this very basic information.

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  12. Oh, by the way. I reread your blurb about the speech therapist. Where did she go to school, Podunk University? What she is telling you is practically malpractice. You should report her to the organization she works for, if not to the State Board. That is unbelievable. Even for mainstream medicine.

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