Oh, how I needed this Shabbos to come. Last week was just... wow.
On Monday I took Gedalya and Adel to the library RIF program while Zusha was in cheider. The library is half a mile from my house... not bad at all. But then I have to go pick up Zusha, and that's a 1.5 mile walk from the library. Plus the one-mile walk home... that makes three. Gedalya hopped onto the carriage for part of the way, so that made for a REAL workout!
The next day we went to pick up Adel's orthotics!
(Notice Adel's insoles on the chair on the left... they were taken out so the orthotics would fit inside the shoes. Below the chair is some cardboard full of molding plaster. Thankfully, we escaped that procedure, because Adel's orthotics require measuring instead of molding!)
That was really exciting. I can't wait to see Adel progress in her walking with the help of the braces. She needs bigger shoes now for them, so picking them out was fun!
Then we picked up Zusha and wound up with three miles of walking under our belts again.
Wednesday was a big day for Adel. We had a neurology appointment for her... a general checkup and a discussion about an MRI. Poor baby Adel was SO nauseous on the train and bus.
She was sweating, crying, screaming, wriggling, dry heaving. We got off the bus ten blocks early and walked the rest of the way to the hospital. Poor baby fell asleep. She woke up in the exam room in an AWFUL mood and was screaming the whole time. It was quite a flop.Adel LOVES water and playing in the sink, so I decided to try that to calm her down.
The weather wasn't great, so we didn't go to too many places after the doctor. We stopped off in Borders and got some fun books and toys.
Then we went to the pet shop next door and played with the kitties. Gedalya was begging me for a parakeet, but we didn't buy one.
Thursday was Adel's one-year re-evaluation at the therapy center. We met with a government official. This was a crucial meeting where they were going to decide which services to increase, which to reduce and which to terminate. The Special Ed and Speech therapists put in for an increase, but Early Intervention started being very stingy with giving out therapy. We weren't expecting the increase, but we thought we'd try anyway. What we really hoped, though, is that they wouldn't decrease it. The therapists coached me on what kind of questions I'd get, how to answer and all that. I brought Adel along to show how she really isn't functioning on a two year old level. I brought letters from the geneticist and neurologist describing her level of delay. I needed to show them that this wasn't just an average kid who needs a boost, but would catch up sooner or later anyway. This is a kid who will not reach her potential without maximum therapy.
Well, we got Speech and Special Ed increased by one! It was very exciting. Now Adel has Special Ed four times a week and Speech three times. Occupational therapy was decreased to one, but that's okay because I wouldn't be able to fit so much into my week anyway. Then I went to pick up Zusha and that was three miles again.
And if you actually read all that, here are some photos as a reward.
...for now.
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