Many people say to me,
"I know you want to have a diagnosis very much, but how will it change anything?"
"We are doing the best we can, working with Adi's symptoms. We will give her all the help she needs. A diagnosis is just a word."
"Maybe it's better that you don't have a diagnosis so that Adi isn't limited by it. "
As if I'd say, "Well, Adi's diagnosis says she will never talk, so why bother trying."
I want that diagnosis, not just out of curiosity. But I'm certain that it will help me help her.
Take a look at this family. They got a diagnosis of cerebral palsy for their twins, but they weren't satisfied. The mother researched more and then stumble upon something that changed the whole family's life forever.
Is this something I can have for my Adi? An answer? A way to help her?
The video shows it is half an hour long, but it really is just repeating another interview with the parents done on a different show. Watch until 17 minutes. Then you can skip to 24:30 to see the twins today. A really touching story.
I just watched it. its amazing.
ReplyDeleteI can't see the video, but I really hope you get the answers you are seeking!
ReplyDeleteIt's basically about twins who had many delays and medical issues. They were diagnosed with cerebral palsy. When they were about 5, the mother was still researching, hoping she can find something valuable and she did. She found and article by a doctor who pinpointed a certain disorder where the neurons don't fire the signals properly to each other, and to the brain.
ReplyDeleteThe symptoms were very specific and described her kids perfectly. She contacted the author and he invited them to fly in to him. He started the girl on medication and within 24 hours she started talking, stopped stumbling all the time, was able to fasten her carseat belt herself...
Eventually they started the boy on it too, and it's unbelievable how these low functioning children, who at age 5 were not really doing anything, transform into totally typical kids who are 100% on their age level. You see them in the video, being interviewed at age 8 I think, acting like you'd expect any 8 year old to act. It's so heartwarming and it gives me hope!
wow! thanks for suming it up for me!
ReplyDelete